Rethinking the Cause of Your Hemiplegic Migraine

Have you ever been told that your hemiplegic migraine (HM) is because of your genes? It’s a common belief, but it might be time to take a fresh look at this idea.

What is Hemiplegic Migraine?

If you experience HM, you know it’s a rare and severe type of migraine that causes temporary paralysis or weakness on one side of your body, known as hemiplegia. You might also have other neurological symptoms like vision problems, difficulty speaking, and unusual sensations. These symptoms, which can last anywhere from a few hours to several days, are sometimes (not always) followed by the typical migraine symptoms: a throbbing headache, nausea, and sensitivity to light and sound.

Hemiplegic migraine is a specific type of migraine with aura, where the aura includes not just the usual visual or sensory changes but also the distinct weakness or paralysis on one side of your body.

Is It All About Genetics?

Hemiplegic migraine is indeed linked to mutations in three specific genes, but only about 20-30% of cases can be traced back to these genetic changes. This leaves a significant number of cases without a clear genetic explanation. While scientists believe other genetic factors may be yet to be discovered, clinical experience suggests that other non-genetic factors could also play a role.

A Different Approach to Treatment

In my experience, treating hemiplegic migraine is often successful with specific mobilisation techniques targeting the upper cervical (neck) spine. This type of treatment does not alter your genetic makeup but can significantly reduce the frequency, duration, and intensity of your migraine episodes.

A Real-Life Example

I recently worked with a patient who had been dealing with HM for ten weeks before seeing me. Her symptoms included loss of speech, numbness, and paralysis that started in her leg and spread to her arm and face. These episodes, which typically lasted 4 to 6 hours, were happening as often as every three days, severely impacting her life. She was particularly concerned about hiding these episodes from her two young children, not wanting to alarm them by seeing her in such a state. Fortunately, most episodes occurred at night when she could discreetly tap her partner for assistance. After five treatments focused on the upper cervical spine, her episodes gradually decreased in frequency and intensity, and it has now been three months since her last HM.

Experience-Based Care

What I have described here is not just about following guidelines—it’s about using my clinical experience to inform treatment. While some might assume that HM is purely genetic, my experience suggests that other (cervical/neck) factors can also be at play, and addressing them can lead to resolution or significant improvement.

In conclusion, while genetics may contribute to some cases of hemiplegic migraine, it is crucial to explore other potential causes and treatment options, especially if your genetic explanation does not fully account for your experiences. This is particularly relevant if your episodes are preceded by or occur alongside neck symptoms and headache.

Until next time

If you are new to Watson Headache®, welcome to the Watson Headache® Approach, an evidence-informed practice when considering the role of the neck in Cervicogenic and Primary Headache.

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